What You Need to Know About Getting SSI for Children

Yes.

Your child might qualify for SSI if:

• Your child never worked and
• Your income and resources (as the parent) falls within the guidelines for SSI and
• The child has a mental and/or physical condition that limits his or her functioning enough to meet Social Security’s requirements and that has lasted or is expected to last for at least one year or result in death.

• In-person at your local SSA, or
• Over the phone at 800-772-1213

If you do not know where your local SSA office is, you can use the field office locator, or call the number above.

SSA has to find that your child has a physical and/or mental condition that either:

(a) is so severe that your child’s medical records & reports show that the condition is the same or almost the same as the requirements in the SSA’s regulations for that particular condition; or

(b) that the condition causes your child to have difficulty functioning like other children of the same age in a way that is marked in at least two or extreme in at least one of the following areas (called “domains”):

• Acquiring and Using Information;
• Attending and completing tasks;
• Interacting and relating with others;
• Moving about and Manipulating objects;
• Caring for him/herself; and/or
• Health and well-being.

You will need to get or ask SSA to help you get:

• Your child’s medical records from past & current clinics and hospitals
• Records from your child’s school (like special education records, IEPs, attendance records, any test results)
• Medical lab test results and results from tests like MRIs, CAT-Scans, X-rays, EKG, etc.
• Letters or reports from your child’s treating doctors or psychiatrists that state the diagnosis, symptoms, findings, medications and their side effects, and how your child’s mental and/or physical condition causes your child to have difficulty functioning in any of the domains listed above.

Most likely. During the application process, a state agency that SSA works with sends applicants to doctors (called “consultative examiners”) who write reports for SSA about the visit.

Also, it is best to get reports from your child’s own doctors because that doctor is more familiar with your child’s condition. The report must be persuasive, that is, it must be consistent and supported by test results, treatment notes, and other documents in the file.

If the application is denied you will receive a written notice. If you want to appeal it, you must file a Request for Reconsideration within 60 days of the date of the denial notice, plus 5 days for mailing. You can file it online at ssa.gov or in person at your local Social Security field office.

If your Request for Reconsideration is denied, and you want to appeal that denial, you must request a “hearing” within 60 days of the date of the denial notice, plus 5 days for mailing.

All forms for appeals can be found online or you can get the proper form from your local Social Security office.

Your child’s disability file is sent to the hearing office that handles the borough where you live. Eventually, you will receive a notice of hearing with a date and time to appear at the hearing where you will get the chance to explain to the judge why you feel that your child is disabled.

It may take a long time before your child’s hearing is scheduled. While you wait, your child should continue to go to treatment and should comply with the treatment.

You should make a copy for yourself and then send or hand-deliver the evidence to the hearing office. You must do this at least 5 days before the hearing. If you cannot get the medical or other evidence in time, then you must notify the judge at least 5 days before the hearing to explain that despite your efforts, you were unable to get the evidence. If you have been unable to get evidence yourself, you can ask the judge at your hearing to help you.

Yes. If your child is very young, then he/she may not have to say anything at the hearing. If the child is older, then the child will be expected to testify. If you are not sure, call the hearing office and ask.

You can appeal the decision within 60 days of the date of denial notice plus 5 days for mailing, of the Unfavorable or Partially Favorable Decision, by writing a letter to SSA’s Appeals Council. The address is in the notice of your child’s decision. In your letter, explain why you think the judge was wrong. If you have a new report from your child’s doctor about the disability you discussed at the hearing (not a new disability), you can send it in with your appeal letter. Or, you can re-apply for SSI at your local office. Please note: generally, you cannot do both. In most cases, you must either appeal or re-apply.

No. Periodically, SSA conducts “continuing disability reviews” to see if the child is still disabled or if his/her condition improved. Also, when your child turns 18, Social Security will evaluate whether your child is still disabled, according to the adult disability rules.

• Call our Helpline: 888-663-6880 – Tuesday, Wednesday or Thursday from 9:30 a.m. – 12:30 p.m.
• Contact your Neighborhood office:
  o Brooklyn: 718-722-3100
  o Bronx: 718-991-4600
  o Manhattan & Harlem: 212-426-3000
  o Queens: 718-883-8147
  o Staten Island: 347-422-5333

The information in this document has been prepared by The Legal Aid Society for informational purposes only and is not legal advice. This information is not intended to create, and receipt of it does not constitute, an attorney-client relationship. You should not act upon any information without retaining professional legal counsel.